Have you ever had a co-worker who you didn’t love but you knew you had to work with them so you try to accept them?
Well, that’s what having kidney disease is like for me. I have not met a soul who loves having kidney disease but know many like myself who try to embrace it and I do mean try. I have met a lot of people along my journey and throughout different stages of their disease. Many of you know that kidney disease changes your entire world and perspective on life. For me, as a patient learning about the disease and how it affects my body helps me to understand and manage it better. Although I have had kidney disease for more than 20 years and believe it or not we still aren’t in love and we may not get there. However, I have a greater appreciation of who I am and who I have become as a result of my kidney disease.
Kidney disease is not a death sentence by any means but rather a new way of living so you can get back to what you enjoy doing in life. It’s adjusting to the new normal that will take some time.
I never classified myself as being sick. It wasn’t until my first transplanted kidney began to fail in July of 2010 when I said to my husband Rodney, I think I’m sick. It may sound funny to you because it was kind of funny to me. But I was used to taking my meds, getting lab work done and going to my appointments. I figured I was really no different from anyone else– because whether it’s an illness or addiction we all have something.
My something just happens to be kidney disease. I was living in my new normal. Being transplanted is just anther form of renal replacement therapy; it doesn’t cure you of kidney disease. You still have to learn to adjust and embrace that you have the disease and you must choose to make the best of it.
It’s not easy… I didn’t get this happy about having kidney disease overnight. However, with the right team of doctors, health care professionals, family and friends I was able to get through it like so many others have. Adjusting to the new normal doesn’t mean that things will be like they used to, it means that there are limitations but also new ways of doing things and finding that inner strength to want to move forward.
Taking responsibility for the steps necessary to live life as optimally as possible with the limits I’m faced with is challenging. Getting back to really living so that I was able to enjoy what I was doing in life was important. I attribute being engaged in my healthcare needs helping me to want to do better in taking care of myself. I can attest that being positive has a lot to do with being able to accept my new normal.
Today, I love my kidney and treat it with love each day and I have learned to embrace my disease.
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